Non-profit report: The Epilepsy Association of Greater Rochester Inc.

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The Epilepsy Association of Greater Rochester Inc. aims to remove the stigma of epilepsy and help people with
epilepsy and related disabilities reach their potential.
EAGR is an affiliate of the national Epilepsy Foundation and operates as the Epilepsy Foundation of
Rochester-Syracuse-Binghamton.
The agency was established in Rochester in the late 1970s by parents in search of answers to their
concerns about epilepsy.
The foundation offers the following programs and services:
— Public education-The organization works to increase community knowledge and understanding of epilepsy
through information, referral, public education and school programs. This is achieved through presentations
designed for students, teachers, community groups, agencies and local employers.
— Residential services-The group provides residential habilitation and promotes self-sufficiency for
people with epilepsy or related developmental disabilities. The agency has two residential homes with
around-the-clock care for residents-Howitt House and Wagner House-and a supportive apartment program with less
supervision and more of an emphasis on teaching independent-living skills.
— Service coordination-The foundation assists people with epilepsy, developmental disabilities and
traumatic brain injury to gain access to necessary services and lead successful lives. This includes assistance
with health care, financial matters, housing, recreational and social needs, and counseling.
— Family and community support-The agency supports families who have loved ones with epilepsy. Programs
include Stresspite, a respite program for families; support group meetings for adults, teens and families;
individual and group counseling; and family reimbursement, a funding of last resort for families with a person
who has a developmental disability.
— Employment programs-The group helps people with epilepsy and related disabilities find and maintain
employment.
The organization’s executive director is Sheila Appleby.

Financial Record Year ended Dec. 31, 2003

Revenue %

Revenue $1,668,870 67
Public support 809,376 33
Total revenue $2,478,246 100

Expenses %

Program expenses $1,819,763 81
Management and general 386,903 17
Fund raising 32,906 2
Total expenses $2,239,572 100
Excess (deficiency) of revenue
over expenses $238,674

Board of Directors
Timothy Shortsleeve, president; partner, Bonn, Shortsleeve & Gray LLP
Stuart Gebell, first vice president/president-elect; technical manager, Cadbury Beverages Inc.
Carol Silver Elliott, secretary/second vice president; president and CEO, Career Development Services Inc.
Robert Hilton Jr., treasurer; valuation associate, Empire Valuation Consultants Inc.
Robert Gross M.D., professional advisory board chairman, Rochester region; associate professor of neurology,
pharmacology and physiology, neurologist, Strong Epilepsy Center, University of Rochester
Andrew Bragdon M.D., professional advisory board co-chairman, Syracuse region; neurologist, University Hospital,
Syracuse
Paul Kent M.D., professional advisory board co-chairman, Syracuse region; neurologist, University Hospital,
Syracuse
Donald Soule, Al Sigl Center representative; president, LPA Systems Inc.
Robert Bergin, Al Sigl Foundation representative; assistant general counsel, government and community relations,
Rochester Gas and Electric Corp.
John Langfitt, past president; assistant professor, neuropsychologist, Strong Epilepsy Center, University of
Rochester
Frederick Wagner, director-at-large; retired, Eastman Kodak Co.

*Due to space limitations, only board officers are listed. There are 20 other board members.

-Researched by Lynne P. Cody

11/12/04 (C) Rochester Business Journal