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Rochester walk will raise funds for rare rheumatic disease  

Rochester walk will raise funds for rare rheumatic disease  

The annual Stepping Out to Cure Scleroderma walk will be held in Rochester next month, in conjunction with the National Scleroderma Foundation’s 25th anniversary.  

It will take place at 9 a.m. on June 3 at Genesee Valley Park, Roundhouse & Canal Side Shelters at 1000 E River Rd. 

Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system, producing excessive collagen that causes fibrosis in the skin or in internal organs.  

More than 300,000 Americans live with the disease, which can cause disfigurement, disability and can be life-threatening. There is no known cause or cure.  

The National Scleroderma Foundation, which was founded in 1998, has been advancing medical research, promoting disease awareness and providing support to people with scleroderma, their families and support networks for 25 years.  

For the last 20 of those years, walks have taken place across the country to bring awareness to the disease and raise funds to support the National Scleroderma Foundation’s mission. 

“The scope of our work is nationwide,” said Mary Wheatley, CEO of the National Scleroderma Foundation. “And we are grateful to our supporters across the country who are leading the fight against this disease. Our Rochester area walk is always a special one; walkers, organizers and volunteers are incredibly committed and passionate.” 

More information on the Rochester walk can be found here.  

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