The musical variety show is intended to raise awareness for Ehlers-Danlos syndrome, which Sharp was diagnosed with in 2013. EDS is a connective tissue disorder that affects the skin, joints and blood vessel walls.
“My disease has made me who I am today, and I want to share my gifts with the community,” says Sharp.
Sharp and members of the Cobblestone Players will perform an eclectic mix of musical theatre numbers (think: “Les Miserables” and “Rent”) and pop tunes by artists like Shawn Mendes and Panic at the Disco.
Sharp has endured a tough journey, but it has given her more strength and tenacity than she could have ever imagined. EDS is known as an “invisible illness” because of how it presents itself. For Sharp, she experienced joint issues starting in high school that resulted in several surgeries. Doctors thought she had hyper-mobility syndrome.
EDS hasn’t kept Sharp down, though. She received a bachelor of fine arts degree in music theatre and a minor in fine art from Niagara University in 2010. She performed professionally with theatres in Buffalo for 10 years, as well as The Diva Show Band for two years.
Sharp moved back to Victor from Buffalo in 2017. Her daily life isn’t easy—she takes 15 to 20 medications, some of which are supplied though a direct line into her heart, and her meals are supplied through a tube—but she perseveres.
“(EDS) has taken so much from me, but I have to keep fighting. Giving up is not an option,” she says. “I’m fighting for the opportunities I know I will still have the chance to achieve.”
“The Show Music Go On” begins at 7 p.m. on Saturday, Aug. 31. cobblestoneartscenter.com